"Listen to the mustn'ts, child. Listen to the don'ts. Listen to the shouldn'ts, the impossibles, the won'ts. Listen to the never haves, then listen close to me... Anything can happen, child. Anything can be." - Shel Silverstein

Saturday, June 6, 2009

Trach Kids Summer Kick-Off Picnic... Whoo!

Wow, that was fun!!  We met up at Belleview Park in Denver and had a picnic lunch, then hung around and played.  Marissa had a blast seeing her old friends, meeting some new friends, and running around barefoot (yes, you read right... BAREFOOT!!  Occupational Therapy is really paying off!  :)  We even rode a train around the park.    Here are some pics from the day.

The group, minus Dawn, Ayden, Gretchen and Celia who were riding the train.

Shandy and Kali who was not feeling well  :(

We were treated to some very special new members, Gretchen (not pictured) and Celia.  They live in Kansas, but Celia's specialists are at TCH Denver, so they come out here pretty often.  We were lucky enough to be able to see them this weekend, as they usually only come out on the week days.

Kevin and his daddy Carlos

Mr. Milo, who is scheduled for decan in July!!  :)
Doesn't he have the coolest hair ever???

Milo and Marissa splashing around

Kali was sooooo over it!  Poor girl

Kevin shading his eyes from the bright sun

Conner (Kevin's little bro) and Ayden.  Ayden is the first of the trach kids to be decannulated, last August

See??  I told you she was barefoot!  :)

Faith and mommy Jen giving BIG smiles!

Miss Noel

Milo showing Noel some love!

Milo and his nurse Tammy.  Have I mentioned Milo has the awesomest hair?  Oh, I have?  Well, it's worth mentioning again.... Milo has the mostest awesomest hair ever!!

Milo and Marissa on the front of the train after the ride.  Wouldn't it be cool if they had actually been able to ride like that?  ;)

Marissa doing her famous "Whoo!"  She sure loved riding the train!

And now, a very cute video of Marissa and Ayden puddle jumpin'

I am so glad we have a group like this to belong to.  Reaching out to others living similar lives is what has saved my sanity.  I love all these kids.  They are ALL rockstars and they are my heroes!


Colleen said...

LOL what a fun time!! Love your friend Milo's hair.

Tamara said...

oh my gosh what a hoot seeing her jump in that water! I think besides her Christmas dance in that sweet red dress this is my ultimate favorite video of her!!! Is there a way I can put that on our blog?? I just LOVE IT, it makes me laugh!!!!!!

Besides all that, looks like your day was fun! How neat to meet everyone again and get to know new friends!

Michelle said...

Looks like you guys had a BLAST!!!

Love the video!!!

Love you,
Auntie Chelle

Rachel Marini said...

oh my! I almost cried at that first picture of all the trach and vent children...seeing the blue and white tubing, ventilators, trachs, sxn machines....we would be SO at home in that group. I wish I had a support group like that around here! I may have to try and figure something out..it looks like a lot of fun. Love ya,

Hope said...

I love that you all have such a great support group and meet regularly. That's great!!

John and Jenna Gensic said...

I love that you guys get together. I think it is so cool to see all of those kids in one vicinity. It seems like Mikan is so different when we take him places (not that that's a bad thing). But it must be neat to be around other people who have similar stories.


Dana said...

Very cute. Glad you got the group as well.

Anonymous said...

I am SO glad that you have this wonderful support group to connect and reach out with. I am sure it helps to know others going through the same thing.

So glad things are going well with Marissa's OT - we will keep praying for you and Jeremy!!

The VW's said...

Glad to hear the day went well and you all enjoyed yourselves! What a great way to get support! And, what a bunch of beautiful, inspirational kiddos! Thanks for sharing! HUGS!

Nana and PaPa said...

I'm so glad you guys had the chance to get together with all the kiddos and had so much fun. Kids AND adults/parents need that socializing and PLAY! LOVE the video of Marissa and Ayden jumping in the puddle....WOW...what progress on her tactile issues!!! Oh....and by the way....did I mention Milo's AWESOMEST Hair?!!! Well....it IS the AWESOMEST!! LOL
Nana & PaPa

Michelle said...

Looks like you all had a great time. I'm only slightly envious in a good way!! What a great group to have.