Wednesday, April 29, 2009
Saturday, April 25, 2009
Posted by Alicia at 3:43:00 PM
Thursday, April 23, 2009
Since it was already 70 degrees at 10:00 am here in lovely Colorado, I decided to un-tarp the good ol' back porch swing and take Marissa out for some Springtime fun!
Posted by Alicia at 12:02:00 PM
Wednesday, April 22, 2009
Yesterday was pretty bad. She threw up three more times. Because of the excess secretions, she would cough real hard, gag and throw up. We kept her on Pedialyte all day and then did half Pediasure, half Pedialyte for he night feeding. She did stay hydrated though, so that's a bonus! Her diapers started to get back to normal by last night, so we'll see if we've reached the end of that roller coaster.
Posted by Alicia at 9:13:00 AM
Tuesday, April 21, 2009
Marissa was up every hour, on the hour, starting at midnight. She (and we) got up for good at 3:30 this morning. 3 pukes, 2 baths, and 5 loads of laundry later, I am not anticipating a very good day. She is still craving her daddy and does not want anything to do with me. My feelings are not hurt, but I am tired of her slapping me. Yes, you read correctly, she slaps me, for no reason. Just hauls off and hits me. No provocation. No warning. I know she does not feel good, but c'mon.
OK, so this post isn't about me and my stinging face.
Please pray that Marissa can keep her fluids in. I do not want her admitted to the hospital because she is dehydrated from puking. And the puking can't feel good on her throat. Please also pray that the poop roller coaster has come to a stop. She seems to follow this pattern when on narcotic pain meds: constipation, needing suppositories to make her go, a few hard and difficult poops, then diarrhea and a bad diaper rash. My poor girl, I feel so bad for her. I would take it all on myself if I could.
One last prayer: Please pray for Stellan. He was just intubated and put under for a three hour, very risky surgery on his little heart as I type this. Pray for his family and for the doctors. If you can, wear orange today in honor of him.
Posted by Alicia at 7:16:00 AM
Monday, April 20, 2009
Posted by Alicia at 9:36:00 AM
Posted by Alicia at 9:33:00 AM
Saturday, April 18, 2009
We all had a very good night. Marissa slept the whole night through, probably due in large part to the Tylenol with Codeine. Jeremy and I would have slept the whole night through if we didn't have to get up and give her pain meds at 12 am and 4 am. Marissa woke up and was happy one minute and grumpy the next, probably due in large part to the fact that it was still 1/2 hour till she got her next pain med.
I have to say that I am very thankful for the trach and g-tube for this particular surgery. The doc said that the two main reasons she keeps kids overnight after a T & A is to make sure their airway is safe and stable (check!) and to make sure they are hydrated well (and check!). Plus, we don't have to wake her up to give her pain meds in the middle of the night. Just squirt it in the g-tube! Works for me!! :)
Right now, she is up and about, being her feisty little self. We are going to enjoy a pajama day while we watch the snow fall outside. Weird that we have had more snow in the last month than we had all Winter! Ahhhh, springtime in the Rockies! We are going to start alternating regular Tylenol and Tylenol with Codeine to try to alleviate some of the constipation Marissa is already dealing with.
On to the pics and vids:
Posted by Alicia at 9:28:00 AM