"Listen to the mustn'ts, child. Listen to the don'ts. Listen to the shouldn'ts, the impossibles, the won'ts. Listen to the never haves, then listen close to me... Anything can happen, child. Anything can be." - Shel Silverstein

Wednesday, April 22, 2009

Much Better Night... Much Better Day?

Yesterday was pretty bad.  She threw up three more times.  Because of the excess secretions, she would  cough real hard, gag and throw up.  We kept her on Pedialyte all day and then did half Pediasure, half Pedialyte for he night feeding.  She did stay hydrated though, so that's a bonus! Her diapers started to get back to normal by last night, so we'll see if we've reached the end of that roller coaster.  


As for the hitting, it is purely behavioral.  We have been having this problem for a few months now, but it is always worse when she is sick or after surgery.  She only hits Jeremy and I, every blue moon she'll hit Michelle.  She mostly hits me though because I am always with her and I have to discipline her more.  We have been trying different things to curb this behavior and it has been getting better now that she is verbalizing more.  

We and her pediatrician believe that the hitting is due to her communication issues.  Even though she knows a lot of signs and is talking quite a bit, most kids her age are able to communicate their wants and needs better than she is.  She is fiercely independent and she knows what she wants when she wants it.   It is so frustrating for both her and us when she wants something and is trying to tell us and we just don't get it.  Plus, she has a STRONG family history of major "terrible two" issues!  ;)  Yesterday morning, with everything else that was going on, the hitting was amplified and so was my intolerance of it.  We'll get through this, just like everything else.

So, with the exception of her waking up once, right as Jeremy and I turned out the light ourselves, last night was astronomically better than the night before.  She slept all night long and even had to be woken up by me this morning at 7:45!  She always wakes up first!  She is in physical therapy right now and is in a MUCH better mood.  I haven't even been hit once this morning!! She has also not thrown up yet today, so I am pretty hopeful.  Thanks for all the support and well wishes.  It helps more than I can say.

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On a completely different note, I have another prayer request.  There is a sweet little one named Kayleigh who has been struggling since she was born ten months ago.  She has lived in the hospital the whole time but it looked as though she was doing well enough to go home soon.  Things took a drastic turn for the worse and, well, my heart is too heavy this morning to type any more about her current condition.  Just please go to Kayleigh's blog and pray with all your might for a miracle.  Pray that God will show the doctors how to proceed and that He will wrap His loving arms around Kayleigh's wonderful parents and family.

I try to teach Marissa the names of all the kiddos I follow on the computer, and I have done the same with Kayleigh.  Marissa will only call her "hands".  You'll see why as soon as you go to her site.

5 comments:

Queen Mommy said...

Lily dealt with the gagging and throwing up for pretty much the entire time she had her trach. And, I'm talking projectile vomiting of massive proportions! Weight gain was a huge issue for her. And, the subsequent laundry was a huge issue for me! LOL So, I do know what you're going through there. As far as the hitting, I completely agree that it's probably just age, coupled with frustration and her less-than-stellar communications skills, and just generally not feeling well. Some kids whine and some hit. Neither are necessarily desirable, but they're certainly understandable. We'll just keep praying for your patience and sanity, and she'll outgrow the behavior. TWO doesn't last forever! :)

And, praise GOD Marissa had a better night (and that you were able to get some sleep too)! Hope today is a better day!!

We've been praying for Kayleigh too. Such a heartbreaking situation!

The VW's said...

Glad to hear that you guys had a better night! Sleep is SO important! I pray that your day goes well too and that Marissa doesn't throw up anymore! That must be so horrible for her after her surgery!

I am praying for Kayleigh's family as well! I am so sad about this!

Dana said...

Glad to hear you all are better today. When having a bad day I always try to remind myself tomorrow will be better. Then I thankd God that I got through the day and It's over.

Good luck for better tomorrows:)

I teach Laneah all my blog friends kid's names as well.

The round-the-worlders said...

It's good to hear that Marissa is doing better and that she still has the strentgh and spirit to fight for what she wants. It may test your spirit at times. Brian was our strong willed child and there were times it was questionable whether he would survive but with help from above and a lot of patience we all survived and he turned out pretty good. Hang in there and remember to give thanks for her strength and your patience, no matter how much it is tested. You all are always in our prayers and never far from our thoughts. We will keep Kayleigh and her family in our prayers as well and pray that they will be able to accept God,s answer what ever it is.

Dad and Arnie

KH said...

Glad you're getting a little more rest. Two's are two's and communication frustrations are tough. It is a season, though--two's don't last forever! (I say that about lots of things!--I'm always sad when the fun phases pass, but thank God a lot of the hard things are phases, too)