Hi friends! Remember me? Yeah, ummmm... Hi! You may have noticed I have been absent lately. I'm back to explain the reasons for disappearing on you.
Thursday, December 29, 2011
Posted by Alicia at 10:37:00 AM
Monday, September 19, 2011
Today marks one year ago that we yanked Marissa's trach. She has done phenomenally well without it, and even though her stoma did not close on it's own and required surgery to close it in May, it's absence has given us all such freedom. She was able to go to school last Fall when she wouldn't have been able to with her trach. We have been able to go where we wanted, when we wanted, without packing up tons of equipment and supplies. This Summer, after the closure surgery, we were able to introduce her to playing in water. She had an amazingly awesome Summer, all because a little piece of silicone was removed from her neck a year ago today.
Speaking of Summer fun, I have to show you all pictures of some of the things we did.
Tubing at the lake in Grand Junction in July. We were there for my little brother's wedding and this was her first time in an open body of water. She was ecstatic!
Playing on the rides at Santa's Workshop at the North Pole!
Posted by Alicia at 10:56:00 PM
Thursday, August 4, 2011
**ETA** This all happened yesterday but I couldn't post until today because our internet was down.
So... I had a great idea to entertain the kids this afternoon. They were both going a little crazy and I decided it would be fun to take them across the street to the movie theatre, which has a cool water jet fountain for them to run around in. It was about 78 degrees but very sunny and humid because of the massive rain storm we had yesterday and last night, and I thought this would be awesome fun for them. So I started to get them ready.
I stripped Rissa down to her diaper, (yes, we are still working on potty training **beating my head against the wall**, but that's a story for another time) took her out on the back patio, and got her sprayed with sunscreen. Next, I got Sully out there to do the same. Before I could squirt the first spray of sunscreen on him, Rissa reached up and shut the backdoor. A cold shock of panic immediately ran through me, as I realized the door knob was locked from the inside and I had no keys and no phone. It was about 2:15 pm at this point. Sully's mom comes to get him at 4:30 and Jeremy doesn't come home until 5:00. AAAGGGHHH!!! I sat down on the patio swing for a moment, trying to figure out what we were going to do.
Really, the only thing I could do was take the kids, Sully in a diaper and t-shirt and Rissa in only a diaper, all three of us with no shoes, and knock on neighbor's doors, hoping they were home and would let us use their phone. We went across the street and knocked on the door. No answer. We went back across the street and up one house and knocked on the door. No answer. I knew our retired neighbor to the back of us was probably home, so we walked back down the sidewalk and around the corner to his house. Luckily, Larry was home. He let us in, gave the kids cookies and drinks and let me use his phone to call Jeremy. We had a nice little chat about the state of the Union while Sully sat there calmly and Rissa ran around Larry's living room like a crazy woman.
By this time it was 2:45. Jeremy went to his boss and said "My wife locked herself and the kids out of the house". Almost before he could finish what he was saying, his boss said "GO!". His boss is the absolute best! We left Larry's house and came back to our backyard and sat on the patio swing until Jeremy let us in about 3:15. Whew!!
We were so lucky in so many ways. It wasn't too hot or too cold, it wasn't raining, both kids had fresh diapers, we had sunscreen, and we had a very nice neighbor to take us in during our time of need. Even though it was a pain in the butt at the moment, we can all laugh at the situation now, because it could have been so much worse. Now I have a very funny story to tell.
And now I am going to have a beer. Or three.
Posted by Alicia at 8:52:00 AM
Thursday, July 28, 2011
Well friends, we went to the orthopedic surgeon to look at Rissa's hips again today. It looks as though surgery to correct the dysplasia in her left hip is on the horizon for next Spring. As I have blogged about before, she has Developmental Hip Dysplasia. If you look at the four bullet points where the risk factors are listed, she fits all four. The cards are stacked against her. Incredible!
Posted by Alicia at 5:56:00 PM
Wednesday, June 15, 2011
Posted by Alicia at 4:03:00 PM
Sunday, May 29, 2011
Having Marissa's trach stoma closed has brought us so much freedom. We are, once again, finding out how much we are blessed.
We are finding so much joy in the small things that we could never do before Rissa got her trach out, such as splashing in the bath, tubing down the Colorado River this Summer as part of my little brother's Wedding Extravaganza Week, and her newest backyard toy... the inflatable water slide!!
Posted by Alicia at 6:22:00 PM
Tuesday, May 10, 2011
Posted by Alicia at 3:48:00 PM
Wednesday, May 4, 2011
Posted by Alicia at 6:17:00 AM
Wednesday, March 16, 2011
'Raining Sunshine' by Miranda Cosgrove from Cloudy with a Chance of Meatballs
Posted by Alicia at 5:53:00 PM
Sunday, March 13, 2011
Posted by Alicia at 8:49:00 AM
Monday, March 7, 2011
Posted by Alicia at 6:53:00 AM
Wednesday, February 16, 2011
Posted by Alicia at 9:25:00 AM
Monday, January 31, 2011
She bowled a 115! Not bad for a first timer! Next time we'll have to see if she can throw it down the lane "old school". :-)
Posted by Alicia at 4:37:00 PM
Monday, January 3, 2011
February: A visit from Uncle Brian and Aunt Julia, just in time for Uncle's 30th B-Day!
April: Rissa added pneumonia to her broken wrist. :-( Luckily, we caught it right in the beginning so it did not hit her as hard as in the past.
June: Rissa had her big surgery to reconstruct her airway. Just a step along the way to getting her trach out!
August: Sleep study, complete with goopy hair and marker on her face. Yet another step toward decannulation.
September: This was a huge, exciting month! It started out with a visit from Grandma. She stayed for a week and she and Rissa loved on each other lots!
Then, I started taking care of my friend's baby boy when she went back to work during the weekdays. Now, Marissa has a "little brother" to boss around!
Then of course, the biggest and most exciting part of the whole year: Rissa had her trach taken out for good! So awesome!!
December: One last milestone for the year: Rissa's first haircut. We only took about two inches off but it looks great!
Posted by Alicia at 8:43:00 AM