Not in the Mood

Well friends, I wish I was in the mood to post something funny and cute, but I'm not.  I have some things weighing heavy on my heart and mind lately regarding Marissa and our plans to move forward toward getting her trach out.  I am wrestling with fear and doubt right now.  I plan on discussing these things with her doctors before I go into anymore detail here ~ not wanting to put the cart before the horse.  There are just some things going on that Jeremy and I feel are not normal and we need to get to the bottom of things.  I apologize if this is confusing to you and you feel left in the dark.  Please just know she is well and not in any danger, but it looks like the road to decannulation may be longer than we hoped.  I ask that you pray for answers to these issues and for peace and strength to deal with whatever the future holds.  I promise to share more when I feel the time is right.  Thanks in advance for your understanding, prayers and support.

I will say that we as a family are excited for tomorrow.  We are going to have our Trach Kids Summer Kick Off picnic in a park in Denver.  We have gotten together many times over the winter as the Mile High Trach Moms group, having to leave our kids behind because of the higher risk of illness during "respiratory season".  I am so excited to see these kids who we have not seen since late September.  And I'm excited to meet some "new recruits" that some of the moms asked to join our group after meeting them in the hospital over the last several months.  Should be a great time and I will be sure to post pictures when we get back.