"Listen to the mustn'ts, child. Listen to the don'ts. Listen to the shouldn'ts, the impossibles, the won'ts. Listen to the never haves, then listen close to me... Anything can happen, child. Anything can be." - Shel Silverstein

Thursday, June 18, 2009

Prayers For Stellan Please


Once again, I ask for your prayers for this precious little guy.  Since he was discharged from Boston Children's Hospital a couple of months ago, he has been on medication to keep his SVT at bay.  It has mostly worked, until recently. Stellan's doctors and family have done everything they can and have taken his dose of this medicine as high as they can and now it seems to not be working at all.  If you remember, he will need another ablation at some point in his life and most likely will need a pacemaker at that time as well. But his doctors are needing him to be at least 40 lbs, which would be when he is about 4.  At only almost 8 months old, he has a long way to go before he is big enough.  Unfortunately, the doctors and his family are quickly running out of options as there are not many more medications they can put him on that will keep his SVT away.  

He was just admitted to the PICU at his local Children's Hospital this afternoon.  The doctors and the family have some very big, very scary decisions to make on how to make Stellan's sick little heart well.  

Thankfully, Marissa's heart condition is relatively minor (as minor as a heart condition can be) and was fixed with a routine surgery when she was three weeks old.  Her heart continues to do well and has proven to this day to be the least of her medical issues. But, for the first three weeks of her life, it was the biggest of her problems and we were afraid we might lose her because of her sick heart.  I can tell you firsthand what this Mama and the rest of Stellan's loved ones are going through at this very moment.  It is one of the most sickening and heartbreaking feelings on the planet to sit by your child's bed and pray for a miracle to keep them alive.  

Please love on this baby boy and his family by lifting them up in prayer tonight.  Please pray that God wraps His loving arms around Stellan, his family, and his doctors at this time.  Please pray for guidance as to how to proceed with his future care.

Thank you.


Michelle said...

I'm so sorry to hear that. He and his family will be in my prayers.

Love you guys.

Auntie Chelle

The VW's said...

I'm praying!!!

I totally understand how they must be feeling! The emotions and uncertainties of having a child with a heart condition are overwhelming! I will be praying that is for sure!

One thing that I don't understand is why the doctors don't put the pacemaker in now? Gavin had one placed when he was 4 months old. Gavin has had many difficult surgeries, but the one that I was most thankful for was the placement of his pacemaker. It has made my life more worry free, knowing that the pacemaker is there to control his heart.

I can only imagine how scary it is for this family to have to do all that they have to do to get his heart under control sometimes! It grips my heart to read about it, so it must be very difficult for them! I pray that the doctors will make wise decisions and that this sweet boy does well soon!