On a side note, tomorrow is Marissa's 2 year Trachaversary. Yup, she has been a neck breather for two years. 18 months longer than the doctor who originally placed it said she would. And we still have at least 5 or 6 months more to go. So much for estimates, huh?
Wow, 2 years. What a long strange trip it's been.
12 comments:
I LOVE the sunglasses and pigtail buns. Isn't spring great?
Jenna
Such a cutie!
Marissa looks great!
It's interesting....we were told Lily would likely have her trach for 2-3 years because her tracheomalacia was so bad. Yet, after about a year, she was doing well, and they were talking about decannulation. Unfortunately, a bronch showed that her malacia was still very bad, and the ENT told me there was no way she would get her trach out for at least 4-5 years....not without an aortopexy. Apparently Lily had a lot of built up scar tissue from her previous aortic surgery, and after the aortopexy, her tracheomalacia had significantly improved. Less than 3 months later, she was decannulated, and we were thrilled!
Oh, and our Trachaversary (from the day it was placed) was May 5.
You guys are in the home stretch now!
Love the pics...she's so adorable and loving the great outdoors!!
Lillian heard you tell her bye-bye and she started waving. She wanted in my lab and I pulled her up here and she was waving and blowing kissed to Marissa it was so cute!!
How fun! Marissa is so cute in her shorts! Isn't it wonderful to go out in shorts and no coat! I love it! Enjoy your day!
Happy Happy Trachaversary! LOL. Mom deserves a celebration....and a bubble bath.
Thank you for the really nice comments and prayers on our blog during our current hospital stay.
I hope you enjoy the sun with your little pumpkin today!
I love the smell of spring and summer in colorado. I love her outfit!
Look how big she is!!! She is so wonderful!!
Love,
Auntie Chelle
Boy, we didn't know you had so many bugs to kill. Looks like Rissa got most of them. She sure enjoyed being outside, and we enjoyed watching her.
Love, Bubby and Zeyda
Look at that cutie pie! Nice shades! The future's so bright...
Isn't she beautiful! That girl has perfect hair, so pretty! Give her hugs from us.
Oh happy happy day....SPRING!!!
Spring is sprung,
The grass has riz,
I wonder where all the birdies is!?
Enjoy!
Love,
Nana & PaPa
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