Downsized and Capped You Ask??

Why yes, of course!!! See for yourselves:

We went to Dr. P's office this morning and downsized Marissa's trach. For those in the know, she used to have a Bivona 3.5 Neo and now she has a Bivona 3.0 Neo. She was a very good girl for the change and only cried a little. Afterward, we put the cap on her trach and noticed an immediate difference!! She no longer wheezed like she did before. Awesome!!

She now has been capped for about an hour and a half. We are noticing that she is beginning to wheeze slightly and works to breathe just a little harder than normal. We are attributing this to the fact that her airway is still trying to adjust to the change in the trach size and the capping. Remember, she still has to breathe around the shaft of the trach in her throat which, even though it is smaller, is still an obstruction. It is also nap time and I think she is just physically worn out from the activity. We are remaining positive that, if we just give her plenty of time to adjust to the change, she will do well. After all, it took her a while to tolerate wearing the PMV all day and now she wears it like a champ! We just have to work her into this slowly.

We are SO excited for this new chapter in our lives!

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On a different note, please keep my friend Michelle and her daughter Lillian in your prayers. Lillian is having palate repair surgery today. For her, this is a step toward decannulation. Please pray with me that the surgery goes well, that she heals quickly with as little pain as possible and can start on the decan road shortly.

Thanks.