"Listen to the mustn'ts, child. Listen to the don'ts. Listen to the shouldn'ts, the impossibles, the won'ts. Listen to the never haves, then listen close to me... Anything can happen, child. Anything can be." - Shel Silverstein

Saturday, May 23, 2009

OK, So I'm A Drama Queen

First off, I just want to thank you all for your encouragement, support and help after my last post. I so appreciate every one of you. You guys rock!!!!

After a good night's sleep and a little time away from the situation, plus all of your comments, I was able to look at what was going on with Marissa's capping from a different perspective. I realized I was jumping ahead way too far, way too fast. I was expecting her to take off and fly right away, without giving her little wings time to warm up. I have tried so hard in the last two years that we have been on this journey to not go overboard with my hopes and dreams for the future. For the most part, up until a couple of days ago, I have done a pretty good job keeping my imagination in check.

I have to say that timing is a little off in my personal life for this new change right now. I am currently PMS-ing. There. I said it. Not that I like using that as an excuse, but I do know I don't have the best handle on my emotions at the moment. I'm just saying. And I'm not going to apologize if that is TMI either. My blog, so there! :)

I think I just got carried away with my imagination because I am hoping and praying so hard for this next step to go well. No, I don't think she has subglottic stenosis or tracheomalacia. I think she will do just fine if we just give her enough time.

That said, I did want to share a quick video of her crying. When she inhales, you can hear the wheeze/squeak I was talking about. It is very pronounced when she cries. She obviously has a hard time so she takes the cap off herself.

I apologize for having to post so many videos. I have been trying to create this post with only 3 videos since 9:30 am. Apparently, Blogger is having a major problem with any video that is over 55 seconds long. Anyone else having problems with this? Blogger is such a Beeaatch sometimes!!!!

Here is a quick vid of her laughing and playing with her Daddy. The wheeze/squeak is not as pronounced when she is laughing. You might want to turn your volume up.

These next two videos are just for grins.

This is the first time she has ever played in the rain. So precious!

Rissa LOVES LOVES L-O-V-E-S this book. She learned how to say the key words pretty soon after we got it for Christmas from Bubby and Zeyda (thanks guys!). Ain't she adorable when she "reads"??


Michelle said...

I love the rain video!!! And her reading the book with daddy!! So precious!!!

Love lots,
Auntie Chelle

John Gensic said...

It's so cute when kids are interested in reading. Marissa is adorable. I'm glad that Marissa is doing better. Don't give yourself a hard time about being a drama queen. I am the same way. Except I like to refer to it as "being a good mother" :) You have to be on top of your game taking care of these kids!


Gretch said...

(((HUGS)) Mama,don't be rough on yourself!! This is a hard journey full of ups, downs, slaps and punches!! I don't know too many of us that don't what IF things to death. However that will just drive us right on over the edge of insanity!! So go easy on yourself,,it is ok to have days of giving up, as long as you buck up again when needed!! Hang in there!! Rissa is so precious and you are WONDERFUL parents!!!

Michelle said...

Ok, I got to watch her reading the book but the others won't play, dang blogger.

I'm such a nut I almost cried listening to her....

Always here for you in blog world, let er rip any time you need to!!

Nana and PaPa said...

Aahhhh...the joy of feeling the rain on your face...nothing else like it..glad she experienced it for the first time. And that first video crying..it's like she knows it's harder to breathe with that cap on there...takes it off in her fit..hands it to you and...I LOVE how she walks off, not crying as hard and throws her hands up like...I'm DONE with that and I'm OUTA HERE!! I've had ENOUGH!! lol
Nana & PaPa