"Listen to the mustn'ts, child. Listen to the don'ts. Listen to the shouldn'ts, the impossibles, the won'ts. Listen to the never haves, then listen close to me... Anything can happen, child. Anything can be." - Shel Silverstein

Friday, March 5, 2010

Not Much to Blog About

Not much going on around here.

I guess I could tell you about the constant temper tantrums from an almost three year old every time I ask her to do something or tell her that I am going to do something (change diaper, give medicine, put her shoes on, etc...) Every. Time. But I won't. I'll save that for another post.

I guess I could tell you that it is consistently taking Marissa up to three hours to settle down and go to sleep each night. She tosses, turns, plays with all three lines, tubes, and wires attached to her, throws her bedding on the floor, etc... But I won't. I'll save that for another post.

I should probably tell you that we visited Marissa's ENT on Tuesday. That we discussed surgery. That she said she could do the bronchoscopy and surgery on the same day. That she will decide at that time what particular procedure she will do to reconstruct Marissa's airway to try to get the trach out about two months later. That this will be happening in three short months, in June. That I am cherishing every little noise Marissa makes because I am so afraid this surgery will change her sweet little voice forever and that makes me sad. That I am very scared of the increased risk of aspiration because of her reconstructed airway. That I am waiting for a call from the ENT's office so we can get this surgery scheduled. I could tell you about all this but I can guarantee a post or two totally dedicated to just this subject will be coming as soon as the surgery is on the books and the reality of it all smacks me in the face.

I could probably tell you about how frustrating it is to try to take a decent picture of the girl lately because, every time I pull out the camera, she flips out. Sometimes crying, sometimes yelling, sometimes just being silly and not cooperating. But I won't. I'll let the pictures speak for themselves:



Intentionally not looking at me when I say "look at the camera. Look at the camera, please. Marissa, please look at the camera."

The look I get when she does finally look at me


The looks I get when I ask her to smile

And now, for a little ray of sunshine:

Distracted:
video

Boisterous:
video

Rambunctious:
video

Well, I guess I had a few things to blog about after all!

9 comments:

Michelle and Sean said...

Such cute pics! And I love the videos! She has such a cute personality.

We will pray for you guys while you wait for the surgery and during the surgery. I hope things go well. That is very stressful not knowing what will happen with doing this surgery.

Nana and PaPa said...

I feel sad and torn. Do I stay happy that Marissa is going to have the surgery that will get rid of her trach?....or...do I feel sad that her voice will likely change and more concerning....she may asperate more than ever?? I really feel torn. I know whatever the doctor recommends is going to be the best for Marissa. On a happier note...I LOVE all 3 videos, but my favorite is the first one....distraction! I've watched it over and over and I laugh every time. Love you guys...

The VW's said...

Well, I have to say that these videos make me happy, because it shows me that I'm not the only one dealing with a rambunctious and distracted child! Here I was, thinking it was because I have boys! It's nice to see that I'm not alone! :)

That first video is priceless! I love that she blows a kiss to the baby and says "bye-bye!" Too cute! She also looked somewhat perturbed at you for letting her baby fall to the ground! HA! Thanks for the laugh!

I'll be thinking of you guys and praying.....it sounds like you have an eventful June ahead of you! HUGS!!!

Shauna Quintero said...

Too much cute! I'm tired just watching all the energy uses!

As for trache stuff...I know how you feel. It's so exciting to think the trache won't be there but I also feel like it's become a part of us. When it's gone will we miss it? What do we do if he gets sick? So many back and forths. I totally get it.

I'm just praying that God will lead you and Marissa's doctors toward the right decision. And that her cute little voice stays in tact, as is, through the whole darn thing.

Janay said...

I hear ya sister! I'm about to go bald today too. Although I'm glad to know that my 3 year old isn't the only one to have major meltdowns over everything & sometimes nothing, I hope Marissa gives ya bit of a break soon :0)

Exciting & scary about the surgery and trach. Let me know when surgery is scheduled and I'll try to help out with the anesthesiologist again.

Hugs!
Janay

Colleen said...

What a little stinker:)I hear it's not the terrible 2's, but the 3's. Look out!

What a scary time for all of you as you approach the surgery. I will keep you in my prayers during this stressful time. That will be a wonderful day when you can announce that her trach is out. What a victory that will be!

I can relate to the bedtime thing. Isaac has suddenly decided that it's time to party at night and sleep all day. They must know that daylight savings around the corner or something:)

ANewKindOfPerfect said...

How torn you must be, this surgery has such good opportunities but it definately sounds scary.

I'm laughing at all the pictures, what an attitude she has!! :)

Hope said...

I'm so excited for this surgery! I know you're scared, but it will be behind you and you'll have a decanned toddler throwing temper tantrums. LOL

Always praying!!

Michelle said...

All I can say is cutefunnyscarywild....how do you keep your house so clean??? Nutjim.