Not much going on around here.
I guess I could tell you about the constant temper tantrums from an almost three year old every time I ask her to do something or tell her that I am going to do something (change diaper, give medicine, put her shoes on, etc...) Every. Time. But I won't. I'll save that for another post.
I guess I could tell you that it is consistently taking Marissa up to three hours to settle down and go to sleep each night. She tosses, turns, plays with all three lines, tubes, and wires attached to her, throws her bedding on the floor, etc... But I won't. I'll save that for another post.
I should probably tell you that we visited Marissa's ENT on Tuesday. That we discussed surgery. That she said she could do the bronchoscopy and surgery on the same day. That she will decide at that time what particular procedure she will do to reconstruct Marissa's airway to try to get the trach out about two months later. That this will be happening in three short months, in June. That I am cherishing every little noise Marissa makes because I am so afraid this surgery will change her sweet little voice forever and that makes me sad. That I am very scared of the increased risk of aspiration because of her reconstructed airway. That I am waiting for a call from the ENT's office so we can get this surgery scheduled. I could tell you about all this but I can guarantee a post or two totally dedicated to just this subject will be coming as soon as the surgery is on the books and the reality of it all smacks me in the face.
I could probably tell you about how frustrating it is to try to take a decent picture of the girl lately because, every time I pull out the camera, she flips out. Sometimes crying, sometimes yelling, sometimes just being silly and not cooperating. But I won't. I'll let the pictures speak for themselves:
Well, I guess I had a few things to blog about after all!