"Listen to the mustn'ts, child. Listen to the don'ts. Listen to the shouldn'ts, the impossibles, the won'ts. Listen to the never haves, then listen close to me... Anything can happen, child. Anything can be." - Shel Silverstein

Thursday, February 19, 2009

Kidney Update Plus Some

I had to post this picture because I just L-O-V-E the way her little legs look in jeans. Just so short and stubby! Couldn't ya just eat 'em up??

OK, please don't. That would hurt my baby girl!! Ha Ha!

OK, I obviously am in a very weird mood. Excuse me for a moment.


OK, I'm composed now. Thanks.

We went to her kidney surgery follow-up today. Not much to report. The doc said her incision looks really good.  The right kidney also looks really good. The left kidney (the one that has always been the "problem kidney") is pretty swollen. The doc said this is not uncommon but she will have to stay on the prophylactic antibiotics for now. That stinks. She'll have another ultrasound in three months to see if the swelling has gone down. Not sure what we'll do at that point if the swelling is still there, but that's another subject for another time.

As for her pneumonia, she is getting better. Slowly. So slowly, in fact, that we (me and the doc) are pretty sure it is viral and not bacterial. If it were bacterial, she would be showing significant improvement after being on antibiotics for 6 days. He energy level is back to normal though. Good for her, not so much for her sniffling, sneezing, aching, runny/stuffy nose, fever, chills havin' mama!! So while there is nothing that we can do to make her better faster, we are doing what we can to control her symptoms and it seems to be working. She is sleeping pretty well at night (everyone knock on wood please!!), so we will let her sleep in our bed tonight and then try to move her back to her room tomorrow night.

I am finally feeling better today after a horrific day yesterday. I have more energy, though it is not back to normal. This cold has knocked me completely on my butt!! Jeremy only had a stuffy nose for a week. Jerk!!  ;0  Marissa is on the other end of the spectrum with pneumonia. Poor girl.  I guess there has to be a middle, right? Being in the middle sucks!

My house is a complete wreck, and I'm not just saying that! Everything is everywhere!!! Clutter clutter clutter!! Needless to say we will be cleaning and straightening the house this weekend. I can't take much more of this!!  

I think we have a star in the making, a major performer on our hands. Take a look at this video. Be sure to pay close attention at the end. This is where she does her best work! :)

I just love the song she is dancing and lip syncing to. It is called "Only the World" by Mandisa. I had the privilege of seeing Mandisa perform at the Women Of Faith Conference last year and I fell in love. This song in particular is a really good lesson to me when I feel overwhelmed by this life and all the things that go wrong. I want to share the lyrics with you and I hope that it blesses you as much as it has blessed me:

Been a hard one
Been a bad one
Been a tough one
Been a sad one
It's been one of those days that keeps chipping away at my heart
Nothin' new here
It's what I do here
It's a stereotypical day in the life
I'm surrounded by all of the pain and the strife
But I know it's alright


'Cause it's only the world I'm living in
It's only the day I've been given
There ain't no way I'm giving in 'Cause it's only the world
I know the best is still yet to come
'Cause even when my days in the world are done
There's gonna be so much more than only the world for me

Anybody, can you hear me?
Do you feel me?
I mean do you feel me?
I know I'm not the only one wearing the weight of this world
We got problems, said it's alright
Just remember, yeah it's alright
Take a good look around
We're just stuck on the ground for a little while
Don't it make you smile


Heaven is a place
Where the tears on every face will be wiped away
Oh and I can't wait to go
But for now, it's enough to know
This is only temporary



Nana and PaPa said...

Oh!! I'm the FIRST one to comment!!! YEAHHHHH!!! Marissa is just absolutely amazing!! She literally FEELS the music and the MOOD of the music! It's like she understands HOW Mandisa is singing and is mimicing her! Seriously....you may TRULY have a musical child on your hands....she is just downright AWESOME!! Love to all...Nana & PaPa

Michelle said...

LOVE this!!! She is a little ham for the camera! What a good song too! She is amazing to me!!!

Sorry to hear about the left kidney, but glad to hear everything else is going well.

Can you believe she is almost 2?!?!?!

Love you!
Auntie Chelle

Elizabeth said...

Hey Monkey (in the middle) if you would stop chewing up her legs they might be longer ;-)

Glad to hear you are feeling better then yesterday, sorry she is not responding as we were all hoping for on the cold as well as the left kidney.

She looks like she may really have some natural music ability. Maybe the drums, lets see her birthday is coming up right. J/K I will wait till she is older ;-)

Everyone get better soon.
Lots o Love

Hope said...

Marissa is so funny. She's the happiest little girl, I just love her personality. And she dances so well, of course!

I was inspired by my sons nurse, so I became a nurse. I'm momma to 4 boys one with RTS, one with T1D. I get my therapy and strength through crossfit and take each day as it comes. said...

She is a ham! This was great to watch. I cant beleive she is sick.

Tamara said...

Ok that was just TOO cute! I found myself dancing right along with her and LOVED the end!!!! There must be dancing in heaven, I know there will be...

Janice said...

LOL Oh my gosh! What is she going to be like when her coordination really kicks in!

This was soooooo funny. Before, she just moved with the music. Now she is trying to sing along and is putting on a show.

Hmmm...this child needs a microphone! I bet she'd sing out too. Birthday is coming up too. Geez, should we include ear plugs for ya mom, along with the drums, horns, and tamborines she'll probably get?

Keep that camera rolling. I love this.

Utah Gram

Anonymous said...

That video was great! Marissa is a natural. She is sooo happy when the music is on and the camera is rolling. It's times like this that make it all worth while. Take care all of you Love Aunt Teri and Uncle Norm

Kendra said...

Aren't little jeans just so adorable?!?! Between the awesome lip syncing, the grooving and well-timed hand motions, you can tell she's heard this song a few times! Thanks for sharing!

The VW's said...

I found you on another site and decided to come to visit! I'm so glad that I did! Your daughter is just precious! She makes me smile! I think that you are going to have your hands full with her! She looks way too smart for her own good! And, what rhythm she has!! I love it and her! I'll be praying for your sweet girl!

Hugs from MI,

Michelle said...

Alicia, that is the cutest darn video I have ever seen!! HIL.A.RI.OUS!!!! I LOVE it!!! She is so adorable!!! I'm glad she's getting over the big P too!

Couple questions...how does she do without an HME on? Lillian would be coughing like a mad woman if she didn't wear hers. Also, were you able to find any no rinse? I don't know if you have a Sally Beauty Supply store around where you live but I know they carry it. I also really appreciate your prayer and encouragement! Thanks for becoming my blog buddy!!

The round-the-worlders said...

We hear they are having auditions for "America's Got Talent". Marissa would be a shoe-in. Dad wants to make sure you know that he thinks you three are the most awsome people he has ever known. (I agree;) )

I hope it's OK that we don't comment often. You have such a wonderful network. Just know we are always following you and praying for you all, and laughing with you and sending "poor babies" your way. If it would help, just let us know and we will comment more often.

With tons of love, as always,
Dad and Arnie