"Listen to the mustn'ts, child. Listen to the don'ts. Listen to the shouldn'ts, the impossibles, the won'ts. Listen to the never haves, then listen close to me... Anything can happen, child. Anything can be." - Shel Silverstein

Thursday, January 15, 2009

Awesome Hair Part IV... Plus Some











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Well, it turns out that Marissa is going to need a T & A before she can be decannulated.

OK people, get your minds out of the gutter!!  ;0

Just kidding, I'm sure you all know that a T & A is a Tonsillectomy and Adenoidectomy.  We have noticed her tonsils are really swollen and she also has a squeak or stridor when she is really agitated or when her trach is capped.  In fact, in the video above, she has her trach capped.  When she picks up her baby off the floor, you can hear a squeak.  

We went to the ENT the other day and, sure enough, the doctor said she did not feel Marissa would successfully decannulate without the T & A.  Her tonsils are just too big and are occluding her airway.  So, another surgery in the works!  As soon as she has recovered from her kidney surgery, she will have to go back under the knife.  :(

At least this surgery is a little more common and routine.  We of course want to give her the best possible chance at getting the trach out.  And truthfully, I am relieved that her tonsils and adenoids are the reason for the squeaking and not something more serious.

So, there you have it!  :)
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On a side note, please pray for Emerson White and her family.  They are going through unimaginable hardships right now.  As if fighting for their daughter's life is not enough, now Medicaid is closing her case.  Please follow the link and read about Emerson.  Leave a note of support and encouragement in the guestbook.  Pray with all your might that God will hear our prayers and this family will get the help they so greatly deserve.  

UPDATE:

Please join in the campaign to bombard our government official's offices with letters showing why an exception to the Colorado Medicaid law should be made in Emerson White's case.  Our efforts can save Eme's life.  Please go to the above website to find out how you can help.

Thank you.

6 comments:

Jessica mommy to Alex/ RTS said...

I see a T and A in our future too, in fact lots of RTS kids have them. Im so glad this is a comman procedure, and I pray it is your answer!

Finding Normal said...

Addison had her adenoids removed last spring. I do think it helped some with the stridor. We're anticipating sinus surgery to attempt to open them so the snot will stop dripping out of her nose continuously!

Michelle said...

Another surgery?? Oh well... I guess this isn't as bad as the kidney surgery, but come on give us a break here!

Love the whale tribute on top of Marissa's head! Very cute!!!

Love you!
Auntie Chelle

Myssie said...

I am so sorry that she will have to have another surgery. Is there any way that they could do both surgeries at the same time? Just a thought, I don't know if they would or if you would even want to but it would seem easier to me to have them both done at the same time. I will keep Marissa in my thoughts...
Myssie

Nana and PaPa said...

Oh my goodness....it seems a bit overwhelming for so many things to be done to help Marissa, but I know if this will speed up the end result of decannulation...then let it be! HHHmmmm.....Do I hear a Beatles song in there somewhere???? Let it be...let it be....let it be....let it be....lol....Go ahead....admit it...you were humming along, weren't you?!...I KNEW
you were! ADMIT IT! Now the tune is going through your head! HA! It's going to stay in your head playing over and over again the rest of the day...I KNOW that's what's happening...gotcha
Love,
Wierd Nana

Nana and PaPa said...

P.S. I agree with Mitchelle...LOVE the whale thing going on with the hair...uh....what kind of whale???
Love,
Nana