"Listen to the mustn'ts, child. Listen to the don'ts. Listen to the shouldn'ts, the impossibles, the won'ts. Listen to the never haves, then listen close to me... Anything can happen, child. Anything can be." - Shel Silverstein

Friday, August 8, 2008

Update from recovery room 1759

Marissa came out of the procedure after about an hour. She did well. Her hearing is 100% and the ear-tubes are in place. The doctor was about to down size the trach, but when she pulled the bronchoscope out, her epiglottis flopped over her voicebox. Can you say, "Floppy Epiglottis" three times fast? This is caused by her recessed jaw. So no downsize yet but she did say that we can do capping trials during the day, as long as we monitor her closely. Because her trach is the same size and she will have to breathe around the tube, we are not sure how well capping will go, but it is worth a shot. Eight months ago, we didn't think she would be able to tolerate the PMV and now she wears it all day. You never know until you try! The doctor said that Marissa's airway and jaw structure look better than when she did her last bronch in April. So all in all, good outcome though not exactly what we were looking for. But of course our first priority is Marissa's health and safety.

Marissa is back to her normal, feisty self. Thank you all for your prayers.


Anonymous said...

Sorry to hear about not capping, but I think everything will work out just fine. All in Marissa's time right? Always!!! Glad to hear her hearing (he he) is good! Let's hope the tubes do what they need! And hey, She didn't get sick!!! Yea!!!

Love you!

Faith said...

Glad things went ok...good news on the ears! Thanks for the update- I was thinking of you guys all day!

Anonymous said...

We are so pleased all went well - more or less. Glad the surgery for the ear tubes went sooo well.
Marissa looks great!! Please take care of yourselves. Love Teri and Norm

dreambuilder87 said...

It's amazing how Marissa pulls through things as well as she does. With time, and a little more growth, there will come a time when she won't need her trach. And so glad she has PERFECT hearing...that'll come in handy when the terrible 2's set in and she ignores you...lol...it won't be because she didn't hear you!