Well friends, we will be headed to the hospital sometime Wednesday for Marissa to have a bronchoscopy to try to discover the source of the squeak. Either the steroids are not working or allergies are not the problem.
We were very optimistic, especially Friday night. At that point, she had been on the steroids for 24 hrs and we started to hear some positive changes. The squeak was still there but not as loud. Really only a slight change, but we thought she could only improve from there. Well, since then there has been zero progress. The squeak is still there.
I am trying not to be discouraged, but it is very hard. Honestly, every time I hear that damn squeak, a little piece of my heart breaks. I just feel it is time for Marissa to catch a break and get that tube out of her neck! Enough surprises and setbacks already! Enough!
I will call Dr. P's office tomorrow to find out what time we need to be at the hospital. I don't really know what to hope or pray that we find right now. She may have some granulation tissue that can be lasered out. She may have some malacia, either tracheal or laryngeal. She may be collapsing at the trach stoma. We may not find the source of the squeak.
I'll update again when we hopefully get some answers on Wednesday. Please just pray that we can find out what is causing the squeak, that it can be easily addressed, and that we can still stay on track toward decannulation this Summer/early Fall.