Please pray that Jeremy passes a very important test today. This particular test is a requirement of his job. He does have several times to take the test but his employer will only reimburse for one time and the cost is $260. Jeremy is super intelligent and he knows his job like the back of his hand, he is just not so good at taking tests.
Please pray that I am able to get Marissa out of this new trend of not taking naps. She gets really crabby in the late afternoon and evening if she does not take her nap. It is bad for her, bad for me, bad for us.
Please pray for Marissa's Ear Nose and Throat doctor (Dr. P). She is pregnant with twins and has already been on bedrest. She came back to work for a couple of months but is back on bedrest for the remainder of her pregnancy. She is due around the end of August, so for her to be out for good this early is scary. While it is very rare for any pregnancy involving multiples to go to full term, I am worried about her and the babies.
Related to the last request, please pray that Marissa's medical care will not suffer while her doctor is out for the next few months. Basically, the timing couldn't be worse. Even though we may have hit some hurdles in regards to Marissa's airway, we are still really trying to work toward getting Marissa's trach out by the beginning of fall. We haven't been told "no" yet, so we are trying to stay positive. We were scheduled to go see Dr. P on July 7 and she was going to scope Marissa to get a better picture of what is going on with her airway. Now, Marissa's chart has been given to a doctor who has never seen her and does not know her. Normally, with most patients, this would not be a problem. But Marissa's case is quite complex and she is best served by seeing someone who is familiar with her and her history. I had asked Dr. P if we could have Marissa's case transferred to a particular doctor (Dr. E) during her maternity leave and she said she thought that was best. This did not happen for some reason. Dr. E is the one who actually did her tracheotomy and who cared for her until we transferred her care to Dr. P in Nov '07. He knows Marissa and what she was like from the day she was born. Please pray that when I get ahold of her doctor's office that we can have her chart transferred to Dr. E with no problem and that he can help Marissa on her path to getting the trach out until Dr. P returns.
Thank you friends. God hears our prayers!