tag:blogger.com,1999:blog-2531603936028461696.post8566456152346336486..comments2023-05-21T05:43:11.657-06:00Comments on Rissa Roo and Her Family Too!: Wait and SeeAliciahttp://www.blogger.com/profile/04061378391288892565noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-2531603936028461696.post-87246050066354712212010-07-10T22:44:48.890-06:002010-07-10T22:44:48.890-06:00oh the waiting game!! cant wait until the decannu...oh the waiting game!! cant wait until the decannulation wait and see is over for her!!! in time...but I am glad things "look" good down there. Hang in there...I cant imagine how it seems to go on and on and on for you all....((hugs))DevonLeahhttps://www.blogger.com/profile/18077296720043318436noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-9098518569354525052010-07-08T16:25:19.450-06:002010-07-08T16:25:19.450-06:00I hate the "wait and see game." I really...I hate the "wait and see game." I really hope and pray that she will get that tube out very soon! No more squeaking Marissa!=)Colleenhttps://www.blogger.com/profile/13538192615781547765noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-90213805117590601852010-07-08T09:31:01.185-06:002010-07-08T09:31:01.185-06:00Ugh, don't you just want to pull that tube out...Ugh, don't you just want to pull that tube out now? I'm not a very patient person either, but you'd think we would be after the ride we've been on with our kido'sLaceyhttps://www.blogger.com/profile/03321275110857561824noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-43878559353507441012010-07-08T09:09:31.271-06:002010-07-08T09:09:31.271-06:00Patience?? Patience??!!! Patience my foot!!! RO...Patience?? Patience??!!! Patience my foot!!! ROFLOL....I have NEVER known you to be patient...even as a child! So...why should this be any different?? LOL....not sure you'll ever learn patience because I'M that way STILL and I'm MUCH older than you! So I don't hold out a lot of hope for you learning patience any time soon...lol. All kidding aside, I think there is a light at the end of the tunnel (summer) on decannulation. Just keep busy (as if THAT'S a problem...lol) enjoy the summer and we'll pray for continued positive progress throughout the healing process. Love you guys..hugs and kisses from us to little Miss Sassy Pants..<br />Love<br />Nana & PaPaNana and PaPahttps://www.blogger.com/profile/14075746377525238084noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-27442992818572237192010-07-08T08:33:51.341-06:002010-07-08T08:33:51.341-06:00I'm so glad the bronch results are good! ((Hu...I'm so glad the bronch results are good! ((Hugs)) I hate waiting too.Hopehttps://www.blogger.com/profile/08185169858979564182noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-15817859231356802972010-07-08T08:32:33.285-06:002010-07-08T08:32:33.285-06:00Alicia - I think your ideas of putting Marissa bac...Alicia - I think your ideas of putting Marissa back on cool mist at night and using the PMV occasionally make a lot of sense. I agree, you know she can tolerate the cap, so it's not a step backwards by trying some things that might help with the swelling. It really does sound like things are moving in the right direction and Marissa will be trach free very soon. Yippee!Annhttps://www.blogger.com/profile/10834197308019791700noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-20043433507084666682010-07-08T08:23:22.828-06:002010-07-08T08:23:22.828-06:00What a silly and cute girl!
I'm so happy for ...What a silly and cute girl!<br /><br />I'm so happy for you, that you got great results yesterday! Praying the squeak goes away soon and that the trach can be removed very soon!<br /><br />Patience has never been a strong point of mine either! Hope the time goes fast for you! Hugs!!!The VW'shttps://www.blogger.com/profile/05116325494368190699noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-80798534775254855242010-07-08T07:57:52.506-06:002010-07-08T07:57:52.506-06:00I will keep you guys in my prayers. As I see you ...I will keep you guys in my prayers. As I see you walking through this, I'm reminded of our ups and downs the year Lily was decannulated. <br /><br />I hear the surgeon tell me "Now, Mrs. [Queen Mommy] I know that if I told you I could take off your daughter's head, spin it around, and reattach it, then she could get her trach out, that you would want to do it...." <br /><br />"...without an aortopexy, there is no way Lily will get her trach out before school age."<br /><br />"....I've seen kids with worse malacia do just fine without a trach. Let's just pull it and see."<br /><br />Which is basically what happened. Lily still had some degree of tracheomalacia, but it was much better after the aortopexy (and subsequent removal of loads of scar tissue in her chest wall). She had a T&A, recovered, and we pulled it. She did fine. <br /><br />After hearing about your experience (and those of other trached kids) where sleep studies and other things are involved, it almost seems like our ENT had a very <i>laissez faire</i> attitude about the whole thing. But, I know that he's considered to be one of the very best, and if he'd had any concerns about decannulation, we would've waited. Still, at the time, it was very much a "Well, let's try it and see how she does" presentation. <br /><br />I have a feeling that when the time comes for Marissa to be decannulated, which IS going to happen (hopefully in the near future), she's going to do great.Queen Mommyhttps://www.blogger.com/profile/17867545054654662913noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-51124571632619328042010-07-08T07:42:35.565-06:002010-07-08T07:42:35.565-06:00Yay for no squeak! I can't believe she is goin...Yay for no squeak! I can't believe she is going to be trache free by the end of summer!!!<br /><br />That's amazing!<br /><br />You are such an awesome Mommy to Marissa and I know you are going to be kissing that naked neck very soon (and with no complications). ;)Shauna Quinterohttp://www.christansjourney.orgnoreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-54968272193988237242010-07-08T07:35:26.576-06:002010-07-08T07:35:26.576-06:00Oh good I hope its just a little swelling. I will ...Oh good I hope its just a little swelling. I will keep praying for you guys!!<br /><br />Marissa looks adorable in those pics!!Michelle and Seanhttps://www.blogger.com/profile/05523818279110462492noreply@blogger.com