tag:blogger.com,1999:blog-2531603936028461696.post5355947252653254401..comments2023-05-21T05:43:11.657-06:00Comments on Rissa Roo and Her Family Too!: The Long and the Short of ItAliciahttp://www.blogger.com/profile/04061378391288892565noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-2531603936028461696.post-31603239363217303382009-10-14T19:11:02.297-06:002009-10-14T19:11:02.297-06:00I don't know how I missed this post. I'm ...I don't know how I missed this post. I'm glad Dr P can do it, so you can stay local. Ava's voice is permanently changed also. Lower and hoarse. LTP w/ rib graft is also a possibility for us. (I thought 2 stages meant the surgery had 2 parts - rib graft and LTP until Dr C corrected me LOL)<br /><br />((Hugs)) Alicia. I know you're digesting everything. How are Dr P's babies doing?Hopehttps://www.blogger.com/profile/08185169858979564182noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-3947721329058293562009-10-14T08:47:58.506-06:002009-10-14T08:47:58.506-06:00Hmmm. That's a full plate. It's good tha...Hmmm. That's a full plate. It's good that you have time to make decisions, time to pray for answers. <br /><br />I just saw on tv a girl whose throat was cut at age 8 and they said she would never speak. At age 27 she sounds fine and has amazed the doctors. Marissa has been amazing her doctors all her life. This child is determined and I think she will sing one day. <br /><br />Love you guys - Big hugs and kisses.<br /><br />JaniceJanicehttps://www.blogger.com/profile/15744994516687840800noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-41079057197702135672009-10-14T06:52:16.936-06:002009-10-14T06:52:16.936-06:00Sorry that you didn't get better news! This i...Sorry that you didn't get better news! This is definitely a lot to take in and to think about!<br /><br />Waiting can be so hard to do! I wish that there were an easy answer and timeline for you! Just remember that God already has all of this figured out for you and Marissa! His plan is best! I pray that He gives you peace and grace as you wait for this plan to unfold.<br /><br />I'll be praying! And, I'll be here to listen if you need to gripe too! HUGS!!!The VW'shttps://www.blogger.com/profile/05116325494368190699noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-4870796630644160582009-10-14T06:46:40.055-06:002009-10-14T06:46:40.055-06:00It's a lot to think about. I think the only ...It's a lot to think about. I think the only way we survive is preparing ourselves for everything.<br /><br />I stress over ENT appointments as well. <br /><br />Pray about it! <br /><br />Hope it all turns out the best possible way for Marissa. I know God will be in it.Danahttps://www.blogger.com/profile/12462627805690136815noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-82348153982813459762009-10-13T21:43:35.261-06:002009-10-13T21:43:35.261-06:00Glad you were able to get some answers. I was kin...Glad you were able to get some answers. I was kinda hoping against what I know to be true about what can happen to her voice and aspiration risk. <br /><br />I thought maybe Rissa would be different.<br /><br />I guess I'm not too surprised by it, but just wishing things wouldn't be that way for her.<br /><br />What's best for Marissa. God is in control and has a plan in all of this.<br /><br />Love you,<br />Auntie ChelleMichellehttps://www.blogger.com/profile/16921202180525715836noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-37414162276268641222009-10-13T20:53:32.357-06:002009-10-13T20:53:32.357-06:00thanks for the update :)
Hugs and prayers for you....thanks for the update :)<br />Hugs and prayers for you...DevonLeahhttps://www.blogger.com/profile/18077296720043318436noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-85364434584331467582009-10-13T19:14:05.979-06:002009-10-13T19:14:05.979-06:00One of the hardest surgeries Lily had was her aort...One of the hardest surgeries Lily had was her aortopexy, which was the procedure she had prior to her decannulation. Not knowing what to expect is always unnerving. You're in my thoughts and prayers!Queen Mommyhttps://www.blogger.com/profile/17867545054654662913noreply@blogger.comtag:blogger.com,1999:blog-2531603936028461696.post-42399754657428534192009-10-13T18:13:34.807-06:002009-10-13T18:13:34.807-06:00Is it still sinking????? LOL.....GOOD!! I don...Is it still sinking????? LOL.....GOOD!! I don't see any gripeing posts yet..lol. Anyway, good to hear some answers...which in some ways aren't much in the way of answers...but at least actions to think about. <br />Love,<br />Nana & PaPaNana and PaPahttps://www.blogger.com/profile/14075746377525238084noreply@blogger.com